Session Overview

MODULE 8 (3:30 – 5:00 PM EST): Research Ethics & Responsible Research

Instructors:

Chris Coombe, PhD, MPH, Associate Research Scientist, University of Michigan School of Public Health
Alex J. Allen, III, MSA, President & CEO, Chandler Park Conservancy

Description:
This session will provide formal instruction in responsible conduct of research (RCR) based on a training developed by Nelson, Dewalt, and Eng adapted for a community-academic audience that fulfills institutional requirements for Human Subjects Protections. Key concepts include history of ethics and research, risks and privacy, vulnerable populations, guidelines and protections such (e.g., informed consent, risks, benefits), and institutional review boards. The session will also discuss application of the updated Common Rule to communities as well as individuals.

Readings & Resources

Israel, B.A., Eng, E., Schulz, A.J., & Parker, E.A. (Eds.). (2013). Methods for Community-Based Participatory Research for Health. San Francisco, CA: Jossey-Bass.

- Chapter 4. Infrastructure for Equitable Decision Making in Research, pp. 107-110.

- Appendix K. Fact Sheet and Informed Consent Form for Study Participants, pp. 646-650.

- Appendix L. Informed Consent Form for Adults Who May Appear in Photographs.

Banks, S., Armstrong, A., Carter, K., Graham, H., Hayward, P., Henry, A., … Strachan, A. (2013). Everyday ethics in community-based participatory research. Contemporary Social Science: Journal of the Academy of Social Sciences, 8(3), 263-277, DOI: 10.1080/21582041.2013.769618

Montgomery, M., Sharpe, J. (2013). Fast Facts about Indigenous Cultural Autonomy: Decolonizing Autonomy to Transform Research Practices. Fact sheet. Center for ecogenetics and Environmental Health, University of Washington. https://depts.washington.edu/ceeh/downloads/FF_Decolonizing.pdf

Reyes, R., Lorenz, C. E., Rennie, S., Richmond, A., & Corbie-Smith, G. (2018). Where Is the Community Dimension in the Updated Common Rule?. Progress in community health partnerships : research, education, and action, 12(1), 83–87.

Reverby SM (2021) Racism, disease, and vaccine refusal: People of color are dying for access to COVID-19 vaccines. PLoS Biol 19(3): e3001167. https://doi.org/10.1371/journal.pbio.3001167

Samantha Keaulana, Jane J Chung-Do, Ilima Ho-Lastimosa, Phoebe W Hwang, Kenneth Ho, Theodore Radovich, Michael Spencer, Luana Albinio, Ikaika Rogerson, LeShay Keli‘iholokai, Kirk Deitschman, Waimānalo Pono Research Hui: Establishing Protocols and Rules of Engagement to Promote Community-Driven and Culturally-Grounded Research with a Native Hawaiian Community, The British Journal of Social Work, Volume 49, Issue 4, June 2019, Pages 1023–1040, https://doi.org/10.1093/bjsw/bcz012